(17 Apr 2024)
UGANDA ALBINISM
SOURCE: ASSOCIATED PRESS
RESTRICTION SUMMARY :
LENGTH : 7:41
ASSOCIATED PRESS
Wakiso, Uganda – 18th March 2024
1. Various of Gertrude Nantumbwe (who has albinism) cleaning the compound
2. Various of Gertrude in a kitchen with another woman who also has albinism
3. SOUNDBITE (Luganda) Gertrude Nantumbwe, Person with Albinism
“When I was growing up, I was afraid to go to school because when I was taken to school, I was a bit older and children would undress me to see if they could see the pancake inside my stomach. They would come pinch me to see if I could bleed or get a wound on my body. I told my auntie that I would not go back to school because children were undressing me and teasing me.”
4. Various of Doreen Nawejje with her mother Rebecca Nalule Mayanja
5. Various of people with albinism in the compound
6. SOUNDBITE (English) Doreen Nawejje, Executive Director of Women and Children Living with Albinism Uganda
“We normally know of these rituals normally performed where they need sacrifices. People with other disabilities may be physically handicapped, visual impairment, if someone maybe had an accident and lost a toe, such people are not sacrificed, yet for us we are an endangered species they are looking for us. To us they believe we carry certain powers which powers they can also add in or boost their sorcery or boost their witchcraft.”
7. Various of Ivan Ssewagudde (who has albinism) washing his clothes
8. SOUNDBITE (English) Ivan Ssewagudde, Person with Albinism
“Once I remember that I feel even sometimes like not moving unnecessary movement, I don’t feel like moving. I like settling in one place, being there because of that background.”
9. Ivan hanging up his clothes on a washing line
ASSOCIATED PRESS
Wakiso, Uganda – 18th March 2024
10. Close up of Gertrude drinking water
11. Various of Gertrude looking at her phone and talking to another woman
12. Various of the skin conditions related to albinism on Gertrude’s skin
13. Close up of Gertrude’s face
ASSOCIATED PRESS
Kampala, Uganda – 18th March 2024
14 Various setups of Dr. Khingi a skin specialist dealing with albinos
15. SOUNDBITE (English) Dr. Ben Khingi, Consultant Surgeon, Mulago Hospital
“Albinism is a condition in which the body genetically fails to build up the pigment that the skin should have, even a white person has melanin which is the pigment. In albinism, the pigment is missing and it’s missing from underneath the skin, missing from the hair, it’s missing from the iris and various parts of the body – so the skin is without the melanin and that exposes it to significant risks.”
ASSOCIATED PRESS
Wakiso, Uganda – 18th March 2024
16. Various close up of women with albinism who are living in the compound
ASSOCIATED PRESS
Wakiso, Uganda – 18th March 2024
17. Various of Rebecca Nalule tidying her kitchen
18. SOUNDBITE (English) Rebecca Nalule Mayanja, mother of child with albinism (Doreen):
“There is someone who told me you have produced a fairy. You know what a fairy means, “musambwa” (ghost). There is someone who told me that. Others said that’s not Mayanja’s child, but for them they knew it was theirs. But being in a community of teachers because we were staying at school, I was a teacher, my husband was also a teacher, the people who were at school welcomed the child and the Christians with whom we went to church were also happy with the child.”
19. Wide of Doreen Nawejje walking into a room
20. Various of women with albinism making soap
21. Close up Doreen
22. Various close ups of Gertrude
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